The Government has announced the 1st July start for GP data upload in England will now start on 1st September 2021 – but the Government has not said that you will hear anything from anyone directly about its plans, nor what (if anything) will change. As a result, we cannot guarantee that you will have any more information in August than you do now.
You do still have choices about what’s done with your data, but the Government has still not committed to telling everyone what it plans to do with NHS patients’ data, nor how everyone can exercise their own choices.
If you want to wait and see, you can do that – and you can join our mailing list to know exactly what’s happening when we do.
If you have concerns and wish to opt out now, the process is this:
No choices below will affect your medical care, or the data that is available for your care
If you live in England and want to stop your GP data leaving your GP practice for purposes other than your direct care, you can do so by filling in and giving or posting the form in to your GP:
Protect your GP data: fill in and give this Type 1 form to your GP practice – This is the most urgent step; the deadline to get your form to your GP practice is (a week before) 1st September (was 23 June 2021), according to NHS Digital.
N.B. If you opted out of care.data in 2014, then you shouldn’t need to do anything now. As most people did both a ‘Type 1’ opt-out and what is now a National Data Opt-out, you can check your NHS Digital opt out status online at NHS Digital. Your GP opt-out status will probably match the opt-out status shown there; although if you’re not sure, giving a a ‘Type 1’ form to your GP Practice now doesn’t have any risk.
If you don’t have a printer
If you don’t have access to a working printer, you can ask the NHS Digital Contact Centre to post you the forms you need. Their phone number is 0300 303 5678 and they are open Monday to Friday, 9am to 5pm (excluding bank holidays), or you can e-mail firstname.lastname@example.org any time.